Privacy
Policy.
Last Updated: May 1, 2026.
Your privacy is important to us. We are committed to protecting your personal information and your right to privacy.
1. Introduction
Welcome to VARAM Sickle Cell Foundation ("we," "us," or "our"). We respect your privacy and want you to understand how we collect, use, and share your data. This Privacy Policy applies to our website and all services provided by the foundation.
By using our services, you agree to the collection and use of information in accordance with this policy. If you do not agree with our policies and practices, your choice is not to use our website.
2. Information We Collect
We collect information that you provide directly to us when you:
- Fill out our "Join Us" or "Contact" forms.
- Make a donation through our platform.
- Sign up for our newsletters or updates.
- Participate in our screening camps or workshops.
This information may include your name, email address, phone number, and any health-related information you choose to share with us for medical support purposes.
3. How We Use Your Information
We use the information we collect to:
- Provide and maintain our services to the sickle cell community.
- Process your donations and send acknowledgments.
- Communicate with you about our upcoming events and programs.
- Improve our website and outreach strategies based on user feedback.
- Comply with legal obligations and protect our rights.
4. Medical Data Privacy
As a health-focused foundation, we may handle sensitive medical data (e.g., sickle cell status). This data is treated with the highest level of confidentiality:
- Only authorized medical staff and foundation leaders have access to patient records.
- We do not sell or lease your health data to third-party advertisers or researchers without your explicit, written consent.
- Data used for statistical impact reports is strictly anonymized.
5. Data Security
The security of your data is important to us, but remember that no method of transmission over the Internet or method of electronic storage is 100% secure. While we strive to use commercially acceptable means to protect your Personal Data, we cannot guarantee its absolute security.
6. Your Rights
You have the right to:
- Access, update, or delete the information we have on you.
- Object to our processing of your personal data.
- Withdraw your consent at any time where we relied on your consent to process your personal information.
7. Contact Us
If you have any questions about this Privacy Policy, please contact us: